IntroductionWelcome to The Blair Banner, a website dedicated to the life of our daughter who suffers from a terminal genetic disease, Sanfilippo Syndrome or MPS IIIB. When Blair was diagnosed with this disease in 2008 we searched the web for any and all information regarding the disease. Our hope is that this website will become a useful tool for other families whose children suffer from Sanfilippo Syndrome and want to know what they might expect. We also plan to post updates for our family and friends as an easy way to keep up with Blair’s health and any fundraising or events. The Blair Banner will continue to evolve, so please check back with us to see new information. Thank you for your love and support for our daughter Blair and all the children with Sanfilippo Syndrome. Sincerely, |
Support Sanfilippo Syndrome
Take A Stand! Help cure Sanfilippo Syndrome by hosting your own Purple Lemonade Stand. Click here to learn how!
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